The journey 

From Annie’s birth in 1990, Sophie and Robin waited until 2007 before the clinicians and scientists were able to make their discovery and provide an explanation of the cause of Annie’s learning difficulties. 

The code for Annie’s array CGH analysis is: 46,XX,arr cgh 1p31.1->1p31.3 (RP4-759M20- >RP11-261J10) x 1

Sophie has written a much-celebrated book about the family’s journey called ‘When life doesn’t follow the script’.

It has been described as an inspirational and personal detective drama where Sophie – with humour, passion and the unexpected support of Hollywood as well as the British Royal family – poses the rightful question ‘Why aren’t all minds valued equally’.

The book is available in Sophie’s native Swedish and is currently being translated into English and French.


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